The first NWRIG open meeting

Dear NWRIG members,

It was wonderful to see so many of you at our first open meeting via Zoom. This is just a quick update re: discussions and how we’ve followed-up.

  1. After a few introductions, we discussed whether the group needed a social media presence. There was a mixed response (some prefer Facebook, some Twitter, some neither!). We agreed that Facebook was most used, and Twitter has its uses. But, we’ll also make sure that important information is communicated here on the website and via email.

Our Facebook and Twitter groups are now ready to use, and you can join via the buttons on the top right of this page.

2. The main discussion was around the format of the online event planned for Friday May 14th. The group are really keen for the event to happen, and think there will be a lot of interest in attending across the region and beyond.

However, in my enthusiasm to showcase some of the brilliant research going on in universities and NHS trusts across the North West, I had planned a too-full schedule. Instead, many in the group felt the launch event should focus on one or two speakers, with plenty of time for Q&A. This makes a lot of sense to me (I’m now well accustomed to screen fatigue), and we’ve re-thought the event along those lines.

I will send out a poster to advertise the event when we’ve finalised the speakers.

3. We had a few offers from members who would like to contribute to the group by writing blogs, speaking about their experiences at meetings, and even running online dance taster sessions! We’re really grateful for all these responses, and please do feel free to get in touch if you’d like to get involved too.

4. Finally, it was stressed that our group should focus on making sure there are opportunities for people with Parkinson’s to be involved in research from the earliest stages. We’re very lucky to have some experts on Patient and Public Involvement among us, and we were happy to hear they’re keen to share their ideas at future meetings.

As always, please feel free to contact me: if you have any thoughts


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