Author Archives: Dr Niki Ray

Your experience – Our inspiration

The research group of PD Avengers needs your help to develop Sparks of Experience.  Parkinson’s research needs a breakthrough idea and it may just be your idea that we are looking for.  No-one knows the condition better than those living with it day in day out.  It is complex and very variable, both between patientsContinue reading “Your experience – Our inspiration”

The Parkinson’s UK NWRIG is LAUNCHED!

We’re now offically a Parkinson’s UK RIG. Our launch event was a huge success thanks to your engagement and involvement. Special thanks also go to Prof Monty Silverdale for telling us about his work on the ‘smell test’. If you missed the event, or would like to watch again, just click the “Click here toContinue reading “The Parkinson’s UK NWRIG is LAUNCHED!”

Calling participants with Parkinson’s for a survey: How do people with Parkinson’s use music?

Dr Ellen Poliakoff (Body Eyes and Movement BEAM Lab, University of Manchester) is collaborating with researchers at the Royal Northern College of Music, Lucerne (Switzerland) and University of Exeter to explore how people with Parkinson’s use music to manage their movements and mood and movements. The survey should take approximately 30-45 minutes (or you can requestContinue reading “Calling participants with Parkinson’s for a survey: How do people with Parkinson’s use music?”

Let’s talk about… going to conferences as a researcher.

The researcher’s perspective – Jude The World Parkinson Congress (WPC) is an international conference, held every 3 years, that provides a unique forum for researchers, clinicians and patients from across the world to meet and share knowledge about the latest developments in Parkinson’s research and treatment. The WPC’s goal is “to advance an all-encompassing approachContinue reading “Let’s talk about… going to conferences as a researcher.”

Let’s talk about… going to conferences as a person with Parkinson’s

Colin’s experience of the World Parkinson’s Congress What do the following cities have in common: Washington, Glasgow, Montreal, Portland and Kyoto?  Answer: they have all hosted meetings of the World Parkinson Congress. The Congress meets every three years, attracting delegates from all over the world. It brings together the very best researchers, clinicians, healthcare professionalsContinue reading “Let’s talk about… going to conferences as a person with Parkinson’s”

The North West RIG Launch meeting!

Meeting link: https://parkinsons-org-uk.zoom.us/j/96483021915 Please Register for the event below so we can keep track on numbers Schedule May 14th 2021 1:30 Meeting opens 1:40 Introductory greetings from Nicola (chair) 2:00 Seminar style talk from Professor Monty Silverdale Title: Diagnosing the Scent of Parkinson’s with Mass Spectrometry and Joy Talk summary. The chance of developing aContinue reading “The North West RIG Launch meeting!”

Let’s talk about… constipation

World Parkinson’s Day (11th April) kicks off Parkinson’s awareness week, an annual opportunity to raise funds and increase awareness. To mark the occasion, the Parkinson’s UK’s North West RIG is publishing a series of blogs throughtout the week. First up, let’s address a subject that people with Parkinson’s are often all too aware of: constipation.Continue reading “Let’s talk about… constipation”